Taking Control: Seizing Power with SMA


Life with Spinal Muscular Atrophy (SMA), depression and anxiety can feel like you’re trapped in a hellish game of pinball, bouncing between obstacles you didn’t choose. Your body won’t move, the world’s a chaotic mess, and control seems like a pipe dream for suckers. Hell no! You’re not a pawn—you’re the damn king or queen of your board. I use my Tobii Dynavox to run my world, and even with SMA, depression and anxiety trying to trip me up, I’m grabbing life by the horns. Here’s how I take control and live like a badass, and how you can unleash your inner warrior too.


Emotions? They Bow to Me


Some days, SMA or just basic life makes me feel like I’m carrying a heavy boulder. Even depression and anxiety can make me not want to do anything for the day or just cry into the abyss. But, I’m not letting those feelings call the shots. With my Tobii Dynavox, I choose my vibe—cranking a podcast that pumps me up or diving into an audiobook that sparks joy. I decide what I listen to, and nobody’s forcing me to endure some sort of music from hell, like rap. (No offense) You’ve got that power too. Pick what lights your soul on fire—music, stories, or silence—and tell those emotions who’s boss. You’re not just surviving; you’re thriving like a rockstar.


My Space, My Kingdom


I can’t strut around rearranging furniture, but my Tobii Dynavox makes me the ruler of my domain. I tweak my lights using my Tobii Dynavox to speak to Alexa—blazing for focus, soft for chill vibes. I choose what’s on my TV by casting, whether it’s a virtual window view to escape or a show that makes me laugh my ass off. These choices aren’t small—they’re my rebellion against SMA’s limits. You can do this too. Find one thing in your space—a light, a sound, a view—and make it yours. It’s your kingdom, and you’re the one wearing the crown.


Owning My Time Like a Legend


SMA, depression and anxiety don't get to dictate my day, even though they try to. I decide what fills my hours: writing words that burn with passion (yep, I control every syllable), connecting with my faith group to fuel my soul, or lifting someone else up with a kind message. My morning routine is my fortress—a warm mug, passive range of motion exercises (PROM), and prayer or devotions that make me feel unstoppable. These are my battle cries, proving I’m in charge. You can build your own epic routine. Choose one thing each day that screams you—whether it’s creating, connecting, or just breathing with purpose. Your time is your legacy.


Advocating Like a Freaking Titan


Advocating for myself is my ultimate power move. Whether I’m managing my care or pushing to go out when nurses drag their feet, my Tobii Dynavox gives me a voice that roars. I don’t waste energy worrying about what others think—that’s their baggage, not mine. Standing up for your needs isn’t just control; it’s a thunderclap that shakes the earth. Try it. Demand one thing you deserve today. You’re not just a voice—you’re a force of nature.


Faith: My Unshakable Core


Choosing to walk with God and follow my convictions is my secret weapon. It’s the fire that SMA can’t extinguish. My faith group is my crew, and I choose how to roll with them—sharing, listening, or just vibing in their strength. These decisions shape who I am and how I conquer the world. Your beliefs, whatever they are, can be your superpower too. Grab them, hold them tight, and let them propel you forward like a rocket.


The Fire Within


Life with SMA, depression and anxiety—or any other curveball—can feel like hell, but you’re no victim. You’re a damn hero. Every choice you make—what you read, who you help, how you budget, what you watch—is a chance to seize control and shine, even if it feels like life is spinning out of control like a damn merry-go-round. My Tobii Dynavox is my sword, but your power is in your mind, your heart, your will. And it always helps with God on your side. So, screw the idea that you’re stuck. Grab every damn thing you can control—your routine, your voice, your faith—and build a life that roars. You’re not just living; you’re rewriting the rules of what’s possible and defying gravity. Let’s set the world ablaze together.

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